SAN FRANCISCO (May 9, 2022) – The Scleroderma Research Foundation (SRF) will host its inaugural Virtual Patient Forum, Collaborating for a Cure, on Wednesday, June 1, 2022, to kick off...
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Jennifer was diagnosed with scleroderma in 2018—years after seeking help. “I started having Raynaud's attacks in 2013 along with other weird things like red blotches all over my face, later...
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Kick off Scleroderma Awareness Month by attending the SRF’s Collaborating For a Cure, our inaugural Virtual Patient Forum! On June 1st, we’ll be hosting our first ever half-day Virtual Patient Forum for all those…
Doris was diagnosed with scleroderma at age 46 and was given only 2-5 years to live. Now, she’s 62 years old. “I thank God every day for blessing me to...
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Raynaud's can affect people with scleroderma of all ages, like 7-year-old Alexis. Ever since their daughter Alexis was diagnosed with scleroderma at age 3, Meredith and Mike have learned a...
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This Raynauds Awareness Month, Dani shares her story and advocates for research. She was diagnosed with scleroderma in 2016—after noticing the classic signs of Raynaud's phenomenon. “Time has made me...
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Sophie Anne and her family are filled with hope, and they inspire us every single day to stay laser-focused on finding a cure. With your support, together we can make...
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For Pulmonary Hypertension Awareness Month, we asked Scleroderma Research Foundation (SRF) board member Bob Smith his thoughts on the need for additional therapies for treating scleroderma-associated pulmonary arterial hypertension (PAH). “We...
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“I learned the word scleroderma at the age of 18 when a rheumatologist explained why my hands were puffy and itchy,” Patty says. “I saw so many doctors during the...
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Today, on her birthday, we remember and honor Sharon Monsky, the SRF’s founder. Sharon understood that research is a journey, one that would not be completed in her lifetime. She…
