Traveling with scleroderma can present unique challenges—especially when oxygen is part of the equation.
“I’ve been traveling with oxygen for almost seven years, mostly for medical appointments,” Dee B. (dx 2016) shares. “It presents many challenges, and I’ve experienced several significant obstacles. But I refuse to let oxygen keep me from living my life.”
One strategy Dee uses is careful planning around her portable oxygen concentrator (POC). “For a two-hour flight, I bring at least 4-5 extra batteries. I’d rather carry more than risk running out,” she shares. “Since not all planes have accessible outlets, I also make sure my batteries are fully charged before heading to the airport.”
Another important element for Dee is understanding the policies of the airline she’s flying with. “Each airline has different oxygen policies. Many require you to submit documentation at least two days before departure,” Dee explains.
When traveling to a new destination, she also takes the extra step of researching local medical supply stores. “If my POC malfunctions, I want to know where I can get a replacement or extra supplies. A quick Google search before the trip saves a lot of stress later,” she says.
Despite the challenges, she has managed to continue her travels, including a recent trip to Washington, D.C., to advocate for scleroderma research. “I’ve met incredible people, visited amazing places, and even traveled to Capitol Hill for meetings,” Dee says. “If you plan ahead and stay flexible, you can absolutely keep going and keep doing what matters to you.”
Thank you, Dee, for sharing your valuable experiences and strategies.
If you’re considering travel with oxygen, be sure to consult with your doctor to discuss your unique needs and plan accordingly.
