Calling all scleroderma advocates—February is Rare Disease Awareness Month and Raynaud’s Awareness Month! The SRF stands with the rare disease community because being rare does not mean being alone. And…
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The first SRF eNews of 2023 is now online! Learn more about upcoming awareness campaigns in February, why one of our funded investigators thinks we're entering an exciting new era...
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Amber was just nine years old when she was diagnosed with scleroderma in 1997. More than 20 years later, she looks back at her journey and how far she has...
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Last weekend, Greg Cohen ran the Chevron Houston Marathon to raise funds for the Scleroderma Research Foundation—and set a half marathon personal record while doing it! 🏃♂️ While there, he...
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UPDATE: This event has now passed. Save the date: The Annual SRF Patient Forum is back this year on June 1, 2023! "Collaborating for a Cure," the SRF Patient Forum,...
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As we start the new year, join us in welcoming the newest member of the team! Meet Kate Ceredona, our Director of Philanthropy. Kate is a development professional with over...
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Last year, the SRF’s Cure Crew—a grassroots group of volunteers—raised more than $157k for scleroderma research! Thank you SO MUCH to everyone who helped make a difference. Here’s just two…
Today wouldn’t be complete without honoring the memory of another person—January 9th is also the birthday of Gay Saget, Bob’s sister who lost her battle with scleroderma in 1994. This video is...
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The Scleroderma Research Foundation (SRF) reflects on one year after losing longtime supporter and board member, Bob Saget, and looks ahead to continuing his legacy in 2023. For more than…
Learn how your donation helps SRF-funded researchers like Dr. Torok (University of Pittsburgh) push the envelope on cutting-edge studies like the juvenile scleroderma project—all to find a cure. Will you help...
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