Last week during the American College of Rheumatology Conference in Philadelphia, the SRF hosted two meetings to convene Principal Investigators and Research Coordinators from all 17 institutions participating in the…
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Thanks to our many friends & supporters, we’ve made real progress for those living with scleroderma. But there’s more work to do to find a cure—and research is the key. When…
It’s been 26 years since the release of “For Hope”—the first and only movie to tell a family’s story of living with scleroderma, directed and executive produced by SRF Board…
Last year, Rae shared her journey to a scleroderma diagnosis with us. This year for Pulmonary Hypertension (PH) Awareness Month, we’ve followed up with her to learn more about the...
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New research: a study based on data from the SRF-launched CONQUER Registry finds that gastrointestinal (GI) symptoms in those with systemic scleroderma are unrelated to scleroderma-specific medications. This study, led…
In this month's edition of the SRF's eNews, we've got some great stories for you—from raising funds through sharpening knives to highlights from PH Awareness Month (so far!). Read More
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Today would’ve been the 69th birthday of Sharon Monsky, the SRF’s Founder. When she started this organization, she understood that a cure for scleroderma would probably not come in her lifetime. But she knew that funding…
November is PH Awareness Month! So, on November 8th, join us for a one-hour webinar featuring Dr. Roham Zamanian (Associate Professor of Medicine in the Pulmonary & Critical Care Medicine Division at…
The October eNews is out with a special announcement. We're hosting a webinar about #PulmonaryArterialHypertension (PAH) on November 8th for PH Awareness Month, and registration is now open! Also includes...
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“I started to lose the color of my skin, and my fingers wouldn’t close all the way in a fist,” says Jessica, thinking of her early scleroderma symptoms. After talking…
