When Maggie was diagnosed with scleroderma in 2019, she didn’t know anyone else with this disease. Her mom remembered that her neighbor had a niece, Erin, who had been living...
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Today, we are deeply saddened to learn of the passing of Gilbert Gottfried. He was a good friend of late SRF Board Member Bob Saget, and so he also became…
In this month's eNews, we're sharing more about our new patient forum, "Collaborating for a Cure," along with information on new CONQUER centers (places where you can participate in research)...
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National Minority Health Month is here. April is an opportunity to raise awareness and encourage advocacy about how health disparities can affect people from racial and ethnic minority groups, including…
Today is National Doctor’s Day, and we want to offer huge thanks to every doctor in the U.S. and around the globe for their dedication and compassion in serving the…
Doris was diagnosed with scleroderma at age 46 and was given only 2-5 years to live. Now, she’s 62 years old. “I thank God every day for blessing me to...
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Meet Sarah Wood, the Clinical/Translational Research Coordinator at Vanderbilt University Medical Center. A recently graduated master's student who researched autoimmune diseases, she's now turning her focus to ending scleroderma. She...
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Anna loved her family, friends, and dancing. Though she was diagnosed with scleroderma at age 10, she lived the next three years of her life with confidence. She shared her...
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Anyone can be diagnosed with scleroderma, including children. Even though scleroderma usually manifests between the ages of 30 and 50, it affects approximately three out of every one million children,...
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In 2018, the SRF launched CONQUER (COllaborative, National Quality and Efficacy Registry), a first-of-its-kind nationwide, longitudinal registry of scleroderma patients. For those who live with scleroderma, participating in CONQUER is...
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