“While eating supper one night, five-year-old Kate showed her purple hands to my wife, Becky,” says Kate’s father, Matt. “She did so in amazement, but we were quite concerned.” Four...
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Anna loved her family, friends, and dancing. Though she was diagnosed with scleroderma at age 10, she lived the next three years of her life with confidence. She shared her...
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Anyone can be diagnosed with scleroderma, including children. Even though scleroderma usually manifests between the ages of 30 and 50, it affects approximately three out of every one million children,...
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Raynaud's can affect people with scleroderma of all ages, like 7-year-old Alexis. Ever since their daughter Alexis was diagnosed with scleroderma at age 3, Meredith and Mike have learned a...
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At the American College of Rheumatology (ACR) meeting, SRF-funded investigator Dr. Kathryn Torok presented on the use of Autologous Stem Cell Transplantation (ASCT) for Treatment-Resistant Juvenile-Onset Systemic Sclerosis. The results...
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For Sophie Anne, scleroderma is “the disease I have been diagnosed with, but it doesn’t change who I am.” She says, “It is important for me to stay active,” and…
