“I like to think of myself lucky in my unluckiness with scleroderma,” Cindy D. (dx 2023) says. "I’m thrilled to have done CAR T and have this chance. I hope...
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“Scleroderma impacts my life everyday," Alaina (dx 2013) says. "But I want to be able to show people that they ARE strong enough." Her journey with scleroderma began early in...
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After her scleroderma diagnosis, Tatiana B. (dx 2020) knew she wanted to help move research forward. A recommendation from her rheumatologist led her to enroll in CONQUER. “I feel deeply...
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In this special StoryCorps recording with Dr. Lorinda Chung at Stanford Healthcare, Falguni reflects on her early symptoms, the challenges of diagnosis, and how her care team helped her after...
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At just eight years old, Grace Pour was diagnosed with scleroderma. These days, she is a passionate advocate for scleroderma awareness, sharing her story with medical students, organizing fundraising events,...
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“When I was first diagnosed, I was very depressed. I didn’t know what this illness would do to me,” Tameka N. (dx 2012) remembers. “Now, I just enjoy life as...
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"A year after I was diagnosed with scleroderma, I started to get very winded walking very short distances," Jackie L. remembers. "After testing, I received a diagnosis of interstitial lung...
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“Living with PAH and scleroderma has been difficult, but it was manageable,” says Barb H. (dx 1994.) “It never stopped me from doing something I really wanted to do.” Barb...
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“My journey to diagnosis was long and frustrating,” says Monika H. (dx 2017). “The first symptoms appeared as swelling and tingling in my fingers and toes, which I initially brushed...
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"I’ve learned that I’m stronger and more adaptable than I gave myself credit for," says Bri S. (dx 2020). "A lot has had to change since scleroderma forces you to...
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