"I'll forever be grateful for an early diagnosis," says Alex P., who was diagnosed with both scleroderma and interstitial lung disease (ILD) earlier this year in 2024. "I am lucky....
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“My father was the strongest man I knew, and I miss him every single day,” says Samantha C. of her father, Louis P. (dx 1990), who passed away in 2021....
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"My original symptoms were not concerning," says Payton C. (dx 2010). "Around 2008-2009, both my shoulders were always sore and aching, but I just took it as being caused by...
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"I've learned that I'm absolutely a fighter,” says Tiffany S. (dx 1989). "Scleroderma has shown me how resilient I am." "I've never known a life other than fighting and living...
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"I never imagined I would be grateful for my diagnosis, but it has helped me understand myself better and given new meaning to my life,” says Nafisa Z. (dx 2020)....
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"I have scleroderma, so I'm asking you to say it." —Cynthia, dx 2021 Why #SayScleroderma? Many people are unaware of what scleroderma is and the impact it has on those...
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Hong Thu Nguyen's journey with scleroderma began in January 2021 with an unexpected change around her nails. "I remember around that time, the edges of my nails suddenly hardened,” she...
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“Scleroderma has changed every aspect of my life,” says Jennifer Zelnick (dx 2020). In early 2018, she first began experiencing symptoms when she felt numbness in her hands and feet….
“She was an anomaly for the scleroderma world,” says Olivia Muñoz Mulkin of her mother, Maria “Missy” Cavazos. This Mother’s Day, as we celebrate the strength and love of mothers…
