"Emotionally, it has been a struggle, and physically, it has been very isolating," says Diana V., describing the impact of scleroderma on her daughter, Aryzabella S. (dx. 2019), pictured right....
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On August 28, Ally's Allies hosted the second annual "Golfing for a Cure" event benefiting the Scleroderma Research Foundation. SRF Cure Crew member Ally W. was diagnosed with scleroderma in...
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"I'll forever be grateful for an early diagnosis," says Alex P., who was diagnosed with both scleroderma and interstitial lung disease (ILD) earlier this year in 2024. "I am lucky....
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“My father was the strongest man I knew, and I miss him every single day,” says Samantha C. of her father, Louis P. (dx 1990), who passed away in 2021....
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"My original symptoms were not concerning," says Payton C. (dx 2010). "Around 2008-2009, both my shoulders were always sore and aching, but I just took it as being caused by...
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"I've learned that I'm absolutely a fighter,” says Tiffany S. (dx 1989). "Scleroderma has shown me how resilient I am." "I've never known a life other than fighting and living...
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"I never imagined I would be grateful for my diagnosis, but it has helped me understand myself better and given new meaning to my life,” says Nafisa Z. (dx 2020)....
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"I have scleroderma, so I'm asking you to say it." —Cynthia, dx 2021 Why #SayScleroderma? Many people are unaware of what scleroderma is and the impact it has on those...
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Hong Thu Nguyen's journey with scleroderma began in January 2021 with an unexpected change around her nails. "I remember around that time, the edges of my nails suddenly hardened,” she...
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“Scleroderma has changed every aspect of my life,” says Jennifer Zelnick (dx 2020). In early 2018, she first began experiencing symptoms when she felt numbness in her hands and feet….
