Dedication, commitment, and lifelong love–the Kosmach family embodies it all. Since 1995, they have poured their hearts into fundraising for scleroderma research in memory of their beloved mother, Joan Kosmach....
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“My mom’s journey was difficult to wrap my head around,” Katie L. shares of her mother's experiences with scleroderma. "I learned over time that there would be no quick fix...
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"People need to know there is hope," says Cinda M. (dx 2023). "There's always a light—you just need to look for it." Cinda's journey with scleroderma began early last year...
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This year, Beth L. and Lisa D. brought the second annual Picklepalooza to life, hitting the courts for a cause close to their hearts. Beth, a Cure Crew champion with...
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This November, Jess M. (dx 2011) hosted her third annual fundraiser for the Scleroderma Research Foundation through her knife sharpening business. For every sale she made from Nov-15, she donated...
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Earlier this month, Cure Crew member Molly S. dedicated the proceeds from her annual 2-night concert, "Dumb Diseases", to the SRF. For the past two years, she has held this...
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Long-time SRF Cure Crew members and scleroderma advocates, the Connors-Zini family, recently hosted the 9th Annual Best Medicine Comedy Show on October 24th in conjunction with Live Snakes Comedy, carrying on...
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"Making information about scleroderma accessible to children and the public is very important to me," says Alvin, C. (dx 2017). His determination to educate others led him to write a...
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"As an athlete, you push through pain, so I didn’t think too much of it at first," Erion M. (dx 2008) says of his initial scleroderma symptoms. In 2006, Erion...
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"By holding this fundraiser, I hope that others are inspired to learn more about scleroderma and about people within the community," says Sofía Q., (dx 2006) who recently hosted a...
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