“I was diagnosed with scleroderma at 17 years old, which means I’ve lived more than half my life navigating this disease,” Kim (dx 2003) says. Her journey began at a...
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“I was diagnosed with lupus in 2003, and I attributed all these weird things happening to me to my lupus,” Yvette T. (dx 2016) says. For years, symptoms like Raynaud’s,...
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“I like to think of myself lucky in my unluckiness with scleroderma,” Cindy D. (dx 2023) says. "I’m thrilled to have done CAR T and have this chance. I hope...
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“Scleroderma impacts my life everyday," Alaina (dx 2013) says. "But I want to be able to show people that they ARE strong enough." Her journey with scleroderma began early in...
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After her scleroderma diagnosis, Tatiana B. (dx 2020) knew she wanted to help move research forward. A recommendation from her rheumatologist led her to enroll in CONQUER. “I feel deeply...
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In this special StoryCorps recording with Dr. Lorinda Chung at Stanford Healthcare, Falguni reflects on her early symptoms, the challenges of diagnosis, and how her care team helped her after...
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At just eight years old, Grace Pour was diagnosed with scleroderma. These days, she is a passionate advocate for scleroderma awareness, sharing her story with medical students, organizing fundraising events,...
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“When I was first diagnosed, I was very depressed. I didn’t know what this illness would do to me,” Tameka N. (dx 2012) remembers. “Now, I just enjoy life as...
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"A year after I was diagnosed with scleroderma, I started to get very winded walking very short distances," Jackie L. remembers. "After testing, I received a diagnosis of interstitial lung...
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“Living with PAH and scleroderma has been difficult, but it was manageable,” says Barb H. (dx 1994.) “It never stopped me from doing something I really wanted to do.” Barb...
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