Anna G. (dx 2019) was just seven years old when she began displaying subtle but concerning symptoms. "The earliest signs that something wrong was when we noticed that her left...
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Traveling with scleroderma can present unique challenges—especially when oxygen is part of the equation. "I’ve been traveling with oxygen for almost seven years, mostly for medical appointments," Dee B. (dx...
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For years, Beatrice V. (dx 2023) searched for answers, visiting an array of specialists who were unable to piece together her puzzling symptoms. “Over and over, I was told it...
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Being diagnosed with scleroderma is uncommon, but for Missa P. (dx 2023), the experience was even more unique—as it was one she shared with her late mother, Karen (dx 2012)....
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Rare Disease Day is here: Today, we are coming together to #SayScleroderma and shine a light on the 300,000 people in the U.S. living with scleroderma. More than 300 million...
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Check your CONQUEST eligibility, celebrate Raynaud's Awareness Month and Rare Disease Day, and meet newest SRF staff member, Anoushka! Read Now
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Did you know that 300 million people worldwide live with a rare disease? In this video, Elisabeth K., PhD (dx 2021) shares why she believes that funding research on rare...
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Boehringer Ingelheim has announced that its Phase III FIBRONEER-ILD trial examining nerandomilast met its primary endpoint, measuring lung function through forced vital capacity (FVC) at 52 weeks. While nerandomilast remains...
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Rare Disease Day is coming soon—a time to shine a light on the millions of people living with rare diseases, like scleroderma. At the Scleroderma Research Foundation (SRF), we believe...
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February is Raynaud's Awareness Month, and we’re sharing stories that highlight the real impact of Raynaud’s and scleroderma. In this video, Anita reads a heartfelt letter written by her daughter,...
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