When Maggie was diagnosed with scleroderma in 2019, she didn’t know anyone else with this disease. Her mom remembered that her neighbor had a niece, Erin, who had been living...
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Today is National Doctor’s Day, and we want to offer huge thanks to every doctor in the U.S. and around the globe for their dedication and compassion in serving the…
Anna loved her family, friends, and dancing. Though she was diagnosed with scleroderma at age 10, she lived the next three years of her life with confidence. She shared her...
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Again, thank you all SO MUCH for making Raynaud's Awareness Month a meaningful opportunity. As we look back at everything you shared this month, here are two more spotlights on...
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This is global Rare Disease Day, #RareDiseaseDay, a day where we join together worldwide to raise awareness about rare diseases. Today, in particular, our thoughts are with all those in...
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This #RaynaudsAwarenessMonth we asked you to spread awareness, share your personal stories, or suggest life hacks for others to try, and we’ve been blown away by your responses! Today we're spotlighting just...
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Greg was diagnosed with scleroderma in April 2017, after experiencing symptoms for three years. As he started to learn more about the disease, it struck him “how rare it was,…
In 1992, President George H. W. Bush met with SRF Founder Sharon Monsky and SRF Board Member Susan Feniger to honor their dedication to raising awareness about a rare and…
February 28th is global #RareDiseaseDay, and the Scleroderma Research Foundation stands with the rare disease community to help raise awareness—because being rare does not mean being alone. Scleroderma, or systemic...
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SRF Board member Bob Saget always went above and beyond to help raise awareness about scleroderma and be an advocate for research to find a cure. His decades-long commitment to...
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