Greg was diagnosed with scleroderma in April 2017, after experiencing symptoms for three years. As he started to learn more about the disease, it struck him “how rare it was,…
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In 1992, President George H. W. Bush met with SRF Founder Sharon Monsky and SRF Board Member Susan Feniger to honor their dedication to raising awareness about a rare and…
February 28th is global #RareDiseaseDay, and the Scleroderma Research Foundation stands with the rare disease community to help raise awareness—because being rare does not mean being alone. Scleroderma, or systemic...
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SRF Board member Bob Saget always went above and beyond to help raise awareness about scleroderma and be an advocate for research to find a cure. His decades-long commitment to...
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Scleroderma Research Foundation board member Bob Saget remembers his sister on her birthday: "Today would have been my sister Gay's 75th birthday. She lost her life to scleroderma when she...
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Prompting conversations about scleroderma that help to raise awareness about the disease and increase funds for research has been a life-long commitment for Will Whitehurst. "I believe so strongly in...
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Dionna was seven years old when she lost her mother, Donna, to scleroderma. She says, “Scleroderma is a beast, the beast that took my mom away back in 2001.” That...
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During Scleroderma Awareness Month, Cure Crew members around the country spread scleroderma awareness and raised funds for a cure in creative ways. Sarah and her business partners at Toni remembered...
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“I love this picture of us,” says Sharon Dobie, looking at a photo of her and her son Matt out on the water on a beautiful day. A man with…
Today we remember Teri and the generosity of how her family honored her. Teri had only been diagnosed with scleroderma for one year before the disease took her life at...
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