Today is Rare Disease Day—a global movement dedicated to raising awareness and improving access to diagnosis, care, and treatment for people living with rare diseases. You can make a difference...
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"People who are living with a rare disease are fighting something that few people understand," Nora R. says of her late husband Andy's (dx 2018) battle with scleroderma. "It's an...
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February is here, and we’re turning up the volume for #RaynaudsAwarenessMonth and #RareDiseaseDay. 📣 There are 6,000+ rare diseases, and scleroderma is one of them. For those living with this...
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For people living with rare diseases, recognizing early signs and symptoms is critical. In scleroderma, Raynaud’s phenomenon is often one of those first warning signs. That’s why February—Raynaud’s Awareness Month, with Rare...
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At just eight years old, Grace Pour was diagnosed with scleroderma. These days, she is a passionate advocate for scleroderma awareness, sharing her story with medical students, organizing fundraising events,...
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Did you know that 300 million people worldwide live with a rare disease? In this video, Elisabeth K., PhD (dx 2021) shares why she believes that funding research on rare...
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February is an important month for the scleroderma community as we raise awareness for both Raynaud’s Awareness Month and Rare Disease Day. In this article, we’ve compiled essential resources to...
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This is global Rare Disease Day, #RareDiseaseDay, a day where we join together worldwide to raise awareness about rare diseases. Today, in particular, our thoughts are with all those in...
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February 28th is global #RareDiseaseDay, and the Scleroderma Research Foundation stands with the rare disease community to help raise awareness—because being rare does not mean being alone. Scleroderma, or systemic...
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