February is here, and we’re turning up the volume for #RaynaudsAwarenessMonth and #RareDiseaseDay. 📣 There are 6,000+ rare diseases, and scleroderma is one of them. For those living with this...
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From symptoms to treatment to day-to-day concerns, your scleroderma questions matter. "Ask a Doctor" is a new Q&A column featuring responses from the SRF’s Chief Medical Officer, Dr. Gregory Gordon,...
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For people living with rare diseases, recognizing early signs and symptoms is critical. In scleroderma, Raynaud’s phenomenon is often one of those first warning signs. That’s why February—Raynaud’s Awareness Month, with Rare...
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“My journey to diagnosis was long and frustrating,” says Monika H. (dx 2017). “The first symptoms appeared as swelling and tingling in my fingers and toes, which I initially brushed...
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"I’ve learned that I’m stronger and more adaptable than I gave myself credit for," says Bri S. (dx 2020). "A lot has had to change since scleroderma forces you to...
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“I’m a fighter. I have faith. And I’m going to push to get a doctor that cares to fight for me too," says Sherry D. (dx 2023). This is the...
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This Mother's Day, let's celebrate all the strength and love of the moms in the scleroderma community—like Madison (dx 2024), a mother of five who is living with scleroderma. “Scleroderma...
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“I think one year in my early 20’s I went to the ER a total of 33 times because I wasn’t receiving help and didn’t know where to turn to,"...
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Anna G. (dx 2019) was just seven years old when she began displaying subtle but concerning symptoms. "The earliest signs that something wrong was when we noticed that her left...
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For years, Beatrice V. (dx 2023) searched for answers, visiting an array of specialists who were unable to piece together her puzzling symptoms. “Over and over, I was told it...
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