“While eating supper one night, five-year-old Kate showed her purple hands to my wife, Becky,” says Kate’s father, Matt. “She did so in amazement, but we were quite concerned.” Four...
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Once again in June, Grove Wine Bar will join the Scleroderma Research Foundation’s campaign, #SayScleroderma, for Scleroderma Awareness Month. Over 400 employees will wear T-Shirts branded with the Grove, SRF,...
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For our first story of Scleroderma Awareness Month 2022, we’re featuring Farah, who was diagnosed in 2006. “My very first symptoms started when I was about 17 years of age,”...
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Today is the first day of Scleroderma Awareness Month. This month has always been marked by the remarkable way the scleroderma community comes together. So, we’re kicking off this month…
SAN FRANCISCO (May 9, 2022) – The Scleroderma Research Foundation (SRF) will host its inaugural Virtual Patient Forum, Collaborating for a Cure, on Wednesday, June 1, 2022, to kick off...
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Doris was diagnosed with scleroderma at age 46 and was given only 2-5 years to live. Now, she’s 62 years old. “I thank God every day for blessing me to...
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This is global Rare Disease Day, #RareDiseaseDay, a day where we join together worldwide to raise awareness about rare diseases. Today, in particular, our thoughts are with all those in...
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February 28th is #RareDiseaseDay, and the SRF stands with the rare disease community to help raise awareness—because being rare does not mean being alone. Scleroderma, or systemic sclerosis, is one of...
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For Pulmonary Hypertension Awareness Month, we asked Scleroderma Research Foundation (SRF) board member Bob Smith his thoughts on the need for additional therapies for treating scleroderma-associated pulmonary arterial hypertension (PAH). “We...
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Vivian loves “creating beautiful things that help people see that healing is not linear.” As an artist, makeup expert, and someone who lives with scleroderma, she speaks from experience. Diagnosed...
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