For our first story of Scleroderma Awareness Month 2022, we’re featuring Farah, who was diagnosed in 2006. “My very first symptoms started when I was about 17 years of age,”...
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Today is the first day of Scleroderma Awareness Month. This month has always been marked by the remarkable way the scleroderma community comes together. So, we’re kicking off this month…
SAN FRANCISCO (May 9, 2022) – The Scleroderma Research Foundation (SRF) will host its inaugural Virtual Patient Forum, Collaborating for a Cure, on Wednesday, June 1, 2022, to kick off...
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Doris was diagnosed with scleroderma at age 46 and was given only 2-5 years to live. Now, she’s 62 years old. “I thank God every day for blessing me to...
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This is global Rare Disease Day, #RareDiseaseDay, a day where we join together worldwide to raise awareness about rare diseases. Today, in particular, our thoughts are with all those in...
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Vivian loves “creating beautiful things that help people see that healing is not linear.” As an artist, makeup expert, and someone who lives with scleroderma, she speaks from experience. Diagnosed...
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In this fifth story of Scleroderma Awareness month, Michael and Maddie share why they care about spreading awareness. Having lived with diabetes since age 8, Michael is no stranger to…
In this fourth story of Scleroderma Awareness Month, Jamie shares her passion for spreading the word about scleroderma. “I do not want future generations to have this bombshell diagnosis dropped…
For Sophie Anne, scleroderma is “the disease I have been diagnosed with, but it doesn’t change who I am.” She says, “It is important for me to stay active,” and…
This second story of Scleroderma Awareness month starts with a simple definition for scleroderma: “fight like hell.” This is how Ile views living with scleroderma. Though Ile first experienced Raynaud’s...
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