“I #SayScleroderma because although it is rare and may feel isolating, it is not one to be alone with," says Ryan M. (dx 2019). "There is a global community that...
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For Scout L., her mother Jackie’s experience with scleroderma is why she chooses to #SayScleroderma: to help drive research that leads to better, more personalized treatments. "Scleroderma affects people in...
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As someone living with scleroderma, Tiffany P. believes in the power of research to drive change. This month, she’s joining us to #SayScleroderma and share why scleroderma research matters to...
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Let's talk about scleroderma—because understanding this disease is key to spreading awareness. It’s Scleroderma Awareness Month, which is a time to shine a light on this challenging disease and the...
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It’s Scleroderma Awareness Month–are you ready to spread the word? Why #SayScleroderma? Because everyone should know what this disease is and does. Because no one should have to live with...
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Throughout June, we invited you to join us in the #SayScleroderma campaign by sharing your own stories and pictures on social media. The response has been incredible. Your posts, photos,...
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"I have scleroderma, so I'm asking you to say it." —Cynthia, dx 2021 Why #SayScleroderma? Many people are unaware of what scleroderma is and the impact it has on those...
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When Ken first studied Swiss-German artist Paul Klee in art school, he had no idea that he would be diagnosed in 2000 with the same disease Klee suffered from: scleroderma....
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We #SayScleroderma for #SclerodermaAwarenessMonth because not enough people know what this disease is or who it affects. Scleroderma is relatively rare. An estimated 300,000 Americans have scleroderma (about 100,000 with...
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If you are in Austin, TX, you can support scleroderma research by going out to eat! Stop by any of the four Grove Wine Bar locations on Tuesday, June 28th...
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