It’s the rarest day of the year: #RareDiseaseDay! You all have blown us away with how you’ve engaged with raising awareness of rare diseases like #scleroderma. There are 6,000+ rare diseases,…
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Nearly 90% of those with scleroderma have Raynaud’s symptoms. This is why Raynaud’s can be a “red flag” that helps lead to diagnosis and treatment of scleroderma. And for Aneila, dx…
February is #RaynaudsAwarenessMonth, so let’s discuss the relationship between #RaynaudsPhenomenon and #scleroderma. Raynaud’s phenomenon is a common condition, and most people with Raynaud’s will not develop scleroderma. The majority of people living with Raynaud’s…
February is Rare Disease Awareness Month. It's an opportunity for us to come together and raise awareness about what it means to live with a rare disease like #scleroderma. To...
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Give a big round of applause to the SRF Cure Crew—in 2023 alone, they raised more than $158,000 for research! The Cure Crew is a grassroots group of volunteers that...
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Lorena was diagnosed with scleroderma in 2021, and she wants a cure found for this disease. “When I went to see my scleroderma doctor for the first time, I was…
In 2015, Mercy began to notice changes in her health. However, it wasn’t until 2017 that she received a definitive diagnosis: scleroderma. “I was progressing pretty quickly at the time,”…
"I lost a lot of me." This is what Cynthia, dx 2021, shared about living with scleroderma. It's just one of many reasons why she participates in research that accelerates...
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Thank you all for an INCREDIBLE Scleroderma Awareness Month. You’ve inspired us with your initiative and creativity. Join us in giving a big shout out to another amazing effort—our collaborators at…
When Ken first studied Swiss-German artist Paul Klee in art school, he had no idea that he would be diagnosed in 2000 with the same disease Klee suffered from: scleroderma....
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