New research: a study based on data from the SRF-launched CONQUER Registry finds that gastrointestinal (GI) symptoms in those with systemic scleroderma are unrelated to scleroderma-specific medications. This study, led…
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Meet Sarah Wood, the Clinical/Translational Research Coordinator at Vanderbilt University Medical Center. A recently graduated master's student who researched autoimmune diseases, she's now turning her focus to ending scleroderma. She...
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In 2018, the SRF launched CONQUER (COllaborative, National Quality and Efficacy Registry), a first-of-its-kind nationwide, longitudinal registry of scleroderma patients. For those who live with scleroderma, participating in CONQUER is...
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As we say hello to March, we're sharing this month's edition of eNews. Highlights include: ➡️ Two of Bob Saget’s friends, John Mayer and Candace Cameron Bure, honor his dedication...
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Research is the best hope for finding a cure. This is why in 2018, the SRF launched CONQUER (COllaborative, National QUality and Efficacy Registry), a first-of-its-kind nationwide, longitudinal registry of...
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As we start 2022, thank you for inspiring all of us at the SRF to remain laser-focused on our mission—finding a cure for scleroderma. And thanks to the support of our…
For Pulmonary Hypertension Awareness Month, we asked Scleroderma Research Foundation (SRF) board member Bob Smith his thoughts on the need for additional therapies for treating scleroderma-associated pulmonary arterial hypertension (PAH). “We...
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The American College of Rheumatology meeting is in progress! Meet Dr. Elana Bernstein, an Assistant Professor at Columbia and Program Director of the CUMC/NYP Scleroderma Program, who studies lung disease in systemic...
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If you missed our most recent webinar, don't worry—you can now watch it online on our YouTube channel. Learn more about CONQUER (COllaborative, National QUality and Efficacy Registry) and why...
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