If you missed our most recent webinar, don't worry—you can now watch it online on our YouTube channel. Learn more about CONQUER (COllaborative, National QUality and Efficacy Registry) and why...
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Meet Dr. Brittany Adler, an Instructor in Medicine at Johns Hopkins University and a rheumatologist in the JHU Scleroderma Center of Excellence. A new SRF-funded investigator in 2020, Dr. Adler...
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Chamara lost her mother, Carmen, to scleroderma in 1992. “I always said that I would get involved with a foundation at some point and time has permitted it now,” she...
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Today, we’re excited to announce the publication of a landmark paper in the leading journal “Cell” from SRF-funded researcher Dr. Howard Chang, Dr. Bingfei Yu, and Dr. Chang’s group at...
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Did you know that artificial intelligence (AI) could help improve scleroderma treatments? SRF-funded investigator Dr. Michael Whitfield has been working for many years to develop a classifier via an artificial...
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Kheesa’s scleroderma symptoms started in 2005. She received her diagnosis two years later, after the birth of her first child. Now she's a mother of two. “They are the achievement...
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February is Black History Month, and Sydney (@sydneysnoble) is spreading awareness about how scleroderma affected her. "I find it extremely important to share my story this month,“ she says. She...
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This Raynaud’s Awareness Month we asked you to share your personal stories, tips, or life hacks with us, and we’ve been blown away by the response! Today, we’re spotlighting three…
One way investigators approach understanding scleroderma is to examine the disease at the cellular level. SRF-funded researcher Dr. Howard Chang and his group recently published a single-cell epigenetic analysis of...
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Like many scleroderma patients, Rose's first clue that eventually led to a scleroderma diagnosis was Raynaud's Phenomenon. As a freshman in college, she initially thought that her hands were hurting...
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